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May 20, 20248 min read
Enduring: when suffering doesn't lead to growth
“The word we might use most commonly next to "suffering" is "season." But what if your experience of suffering is your life's climate?...
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Feb 13, 20242 min read
Stories that challenge: Alan and Ben
I currently have a series of blog posts being hosted by Church Action on Poverty. The first one tells the stories of Alan and Ben, two...
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Jan 15, 202410 min read
Living in a hostile environment with chronic illness
I actually wrote this blog post back in November - still autumn - but forgot about it so never reviewed and posted it. Here it is, a...
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Dec 4, 20235 min read
Finding joy when you're in poverty
I had the pleasure recently of speaking at my church about poverty and my experience of it. At the end, one lady asked a question about...
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Oct 30, 20237 min read
Using food clubs: visit #2
Today was my second visit to a food club. This time, I’d swapped to one nearer to me, though still a mile away. That’s fine with my...
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Jul 17, 20239 min read
Accepting charity is hard: using a food club in the UK
I went to a food club recently. A food club is where you pay a small-ish amount of money for food that is about to go out-of-date, or...
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Feb 14, 202310 min read
SAS: who dares illness?
I recently started watching the series SAS: Who Dares Wins, right from the first series. I’ve found it quite addictive, possibly in part...
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May 23, 202210 min read
The Least, the Last and the Lost should include the long-term unemployed
I was recently recommended Mez McConnell’s latest book, The Least, The Last and The Lost (I think that’s the right order!). Church Action...
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Jan 17, 20222 min read
Ramblings following loss
It used to be that I was part of a team of people with chronic illness who researched and wrote about the government’s actions on social...
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Apr 26, 20214 min read
Reflections on gardening: sin and relationship
I love gardening. I love sitting on the ground in the sun removing weeds, dead-heading flowers or re-training a clematis. I love pruning...
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May 11, 20203 min read
Your life or my luxury?
It is, when I get down to it, fear. Fear because the people who need to care don’t care. Fear because I can’t get them to care. I can’t...
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Feb 1, 20202 min read
Sometimes science is frighteningly wrong: the history of autoimmune disease
Historically, women suffering from multiple sclerosis were told that it was all in their heads. Then researchers discovered that people...
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Dec 11, 20194 min read
PIP: locking chronically ill people out of disabled benefits
PIP isn’t supposed to be about diagnoses. But even with my diagnoses, I have major difficulties getting benefits assessors from a range...
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Dec 11, 20195 min read
Learning to live with chronic illness without independence
Recently I failed a PIP appeal. I get standard rate mobility - which at one point the Tribunal were minded to take away - but was...
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Dec 11, 20194 min read
PIP: maintaining poverty, removing choice
The point of extra-costs disability benefits is to meet some of the costs experienced by people with disability, in order to raise them...
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Mar 18, 20195 min read
Where does all the money go?
I haven’t blogged in a while, though I’ve been meaning to. I’ve been meaning to write about the unexpected expenditures that make a big...
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Nov 22, 20182 min read
UC budgeting nightmares
I logged in to my UC journal today to see where DWP-UC is up to with paying me the right amount of money. They’ve made one correction –...
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Nov 12, 20186 min read
PIP appeal – overprepared fraud?
I had a PIP appeal today. I’ve been waiting for it for ten months. I don’t think it went well. There are some points in my favour: the...
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Oct 23, 20183 min read
Missed telephone appointment – might I be sanctioned?
Some moments of sick apprehension today. I remembered, some time after the appointment time, that today was the day for my monthly UC...
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Oct 18, 20182 min read
Some good news – I think
I’ve received some good news. My UC journal today had an letter added to it saying that they have decided that I have limited capability...
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